Anyone else spamsieve crap out few days12/2/2023 ![]() I've even seen "Based On" recommendations having literally nothing at all to do with the video it's recommending. The only connection between them is that they are both movies. And yes, it when I hit "Not Interested" it shows as a recommendation based on Rogue One. For example I watched a video about the Rogue One deleted scenes, so it recommends me a clip from a 1970's movie I've never heard of. Many recommendations are confusingly tangential. On average it seems 3/18 videos are even remotely relevant to me. I was on the wrong meds for a while and things just got worse, but now that I'm on better meds for me I am noticing improvement, and actually had some moments where I felt myself again.Half of my "recommended" feed is Russian, Indian, Czech and Spanish! The rest is made up of videos I've already watched, or already dismissed, and utterly random crap. I think a lot of it must have to do with finding the right medication or dose etc. I'm adjusting to round two of meds and so far I'm doing a lot better - went a solid week without even a mild seizure, and am starting to feel somewhat "normal" again. The tiredness also comes from the medication, as well as dizziness. I also get migraines, so it's just a constant flow from one weird feeling to the next. Sometimes I'm so weak and tired like I just had a bad seizure, but didn't. Other times it's very similar but drawn out and comes in waves. ![]() Sometimes it feels just like the moment before I go in to a tonic-clonic, but then goes away. I don't even know what it is to be honest. I'm still newly diagnosed after it progressing to weekly tonic-clonic seizures so I'm holding on to hope that those days become less frequent as time goes by on medication. I think a lot of people with epilepsy can. Yes I know what you mean for sure, in pretty much every way. Mods reserve the right to remove content or restrict users' posting privileges as necessary if it is deemed detrimental to the subreddit or to the experience of others. By consensus, the /r/Epilepsy community has decided to disallow individual fundraising appeals.We request to review all research studies/ surveys/ blogs before they are posted or they will be automatically removed.Messaging users without their consent regarding self-promotion will get you banned.R/epilepsy attempts to be politically neutral, and we expect our users to respect that. While everyone is entitled to their beliefs, we will not accept attempts to pressure others or hijack the subreddit's conversation. This is not the place to promote an ideology or political views.We are not medical professionals and cannot diagnose you or give you medical advice.ĭo not promote "quick fix" products or ideas.ĭrug seeking or gifting posts are prohibited site wide, all drug seeking or gifting posts will be removed and can lead to a reddit wide ban.Posts related to self-harm will be removed immediately.Do not post anything that would be seizure-inducing to members of the community.Personal attacks, bigotry, fighting words will be removed and can result in a ban.We enforce a standard of common decency and civility here. When asking advice, provide as much information as you are comfortable giving (age, type of seizures, country, etc).(CURE) Citizens United for Research in Epilepsy US Department of Veteran Affairs/Epilepsy ![]() Psych & Seizures: The Interaction Between Mental Health and Seizure DisordersĮpilepsy in the Workplace and the Americans with Disabilities Act (ADA) If you need urgent medical assistance, please call 911 (USA/Canada), 999 (UK/Ireland), 000 (Australia) or 112 (most other countries). To share ideas about the direction of research and available treatment regarding epilepsy, seizure disorders, and SUDEP, and overcome the challenges created by epilepsy through discussion and support.ĭisclaimer: While we want to help you and ensure that you get the assistance you need, the r/epilepsy community are not medical professionals and cannot provide medical advice. ![]() The mission of /r/epilepsy is to provide a community forum for people that are affected by epilepsy. If you are a parent, sibling or a child of someone with epilepsy feel free to note it as you wish. Show your flair to reflect your treatment: Example: Keppra: 1000 mg Lamictal 150 mg. ![]()
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